Our Purple Mattress Review!


So if you’ve been on facebook for the past any-amount-of-time, you’ve probably become victim to hilarious new marketing campaigns like this one for VidAngel. And this one, by Purple mattress. I’m just a down-home makeup tutorial watching facebooker like you, and I have to say I don’t mind the new marketing angles. Hilarious is key when we are in information overload every day and it’s probably why I bought the mattress I did. What can I say? I have a soft spot for smart business.

Okay, maybe it’s not all because of the funny marketing. I also think that the Purple Mattress looks really, really, really cool. And I really like the color purple – though that didn’t influence my decision to get this bed as much as smashing a raw egg that never breaks did.

My fiance (that’s Ray…ask me about him anytime…he’s so fun to talk about!) has narcolepsy. There are some other writings about that on this blog. Here’s one in case you’d like to read that next. What I mean by that, though, is that we take sleeping pretty seriously around here. It’s already hard enough for him to get good quality sleep fighting allergies, noises, roommates, and the decision of his meds to work or not each night, so we don’t need the basic nuisance of a bad bed to make things worse.

That’s why, like every good millennial, we scoured the internet for days reading reviews about which mattress will keep us the most satisfied with our sleep. I will also say – he’s not the only one that needs good sleep. I don’t even like hanging out with myself when I’m tired.

There are a number of mattresses that sell exclusively online. They give you options to try their mattress for 100 days (generally speaking) and then if you hate it, be done with it and get your money back. Usually those things appear to be gimmicky, but with Purple, it really sounds like it’s true. (See the note at the end about how responsive they are on facebook – this is where I learned these facts)

So, that all being said, we bought a Purple mattress! It’s currently wrapped up and sitting in my living room, counting down on its 100 days, but also waiting for us to be able to move into our new apartment. I will be moving in first, so I’ll get to do all the major deciding, and we’ll update you when we give it a try. From what I’ve heard, we’re about to start sleeping on a cloud. I hope that’s true!

The mattress itself was $999 for a queen. That appears to be a ton of money, but in reality, for a good bed, it’s not. Of course it will be if sleep isn’t a top priority in a home, or you have great sleepers using your mattress, but for us, like I said, quality of sleep is a huge game changer in our life. And it is much cheaper than most available memory foam mattresses.

There are a couple other costs that come with it as well. First, I have a normal box spring right now, so that must be replaced. Memory foam mattresses must be put on a firm foundation, so a normal box spring won’t work. This isn’t a huge deal for us either, because I’ve recently discovered that I am pretty darn allergic to dust mites and I know my box spring is full of them because it’s been used – and just about everything we use is full of dust mites.

That being said, we recently purchased this box foundation. Purple requires something like this to host the mattress to keep the warranty in good working effect. This foundation will be sufficient, right Purple?

It is recommended that sheets used for the mattress have stretch to them as well. We didn’t buy the exact kind recommended by Purple because they were out of our price range and because we need to wash our sheets in hot water (for the dust mites) which many of them did not recommend for their fabric. I was sure, though, to find some that are said to “give” to some degree as well as were potentially a bit over-sized for the mattress. We’ll see how that goes. We also chose an over-sized allergen and waterproof protection mattress encasement because that should give us plenty of room to use the effects of the fancy Purple polymer as well.

All of that being said, the first night trying the mattress will be late next week. I’ll update you then – hopefully with raving reviews!

If you’d like to check out Purple’s facebook page do so here. They also get points for being amazingly responsive on there!

Sleep well all!

…because love wins.

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I am marrying someone with a chronic illness.


I didn’t want to marry someone who had as much difficultly as I did in life. I wanted someone who had it all together – who didn’t have a hard time doing the things I do – who could take care of every part of me. Maybe somewhere in life I had been led to believe that I needed that. That I needed someone to take care of me all the time, and that there was only a specific way in which that could be done. I’ve learned differently.

So I had a list of qualities that made me think no one was good enough to do the job. They weren’t spectacular, but they were probably very different than others had. I guess I don’t really know what they all are anymore, because I think I’ve thrown those out the window in exchange for way more than I thought I needed.

Ray is perfect, for me. Not in the blah blah blah cliche way. But in the way that only God can possibly know what I need to take care of my soul, my body, and my heart.

He is a mess. And so am I. A big old beautiful mess.

When he was diagnosed with narcolepsy, I suppose that’s the time that I could have said, “Well, that’s going to be too hard, so nope.” That certainly wasn’t on my list of things I wanted in a husband. There are hard things about it. He can’t be scared because his legs will give out underneath him. (no, I’m not kidding – it’s called cataplexy) And there are certainly times in life when he’ll be scared and we can’t stop that. We have strict bed times. It’s not a lot of fun to live in the night all the way to 9:30pm before saying goodbye, but it’s what we have. The medicine is expensive, and if we don’t have it sometime in the future, we’re probably a bit out of luck. And maybe we’re naive (duh, who isn’t?) but we’ll deal with that when it comes.

Anyway, the point is, I’m marrying someone with a chronic illness. And I would recommend you do so too.

The thing is, we know we are very human because of chronic illness. I am sick, then he’s sick, and sometimes we’re sick on the same day. And those days are hard, but they are also full of love. We aren’t prideful because we are aware that it’s all pretty able to fall apart at any time. And we like our weird illnesses and the unique parts about us that challenge the other. I like to stay up late, but it’s healthier for me to go to bed. So marrying someone with narcolepsy makes me a better human – in a way I didn’t expect. Thanks God.

I’m marrying someone with a chronic illness and I’m really excited about it.

Pray for us, always, and forever, please. 🙂

…because love wins.

Narcolepsy Diagnosis: Details


happyThis bright-eyed guy was diagnosed with narcolepsy two weeks ago. For those of you who do not know what narcolepsy is, here’s a short explanation…

Essentially, the part of the brain that tells us when to sleep and wake up is a little confused (or a lot confused) in someone with the disorder. That means that while it appears often that someone with narcolepsy is sleeping a lot, they actually rarely, if ever, go through a long sleep cycle including the deep sleep that our bodies need.

The understanding by most people is that REM (rapid-eye-movement) sleep is our deepest, most refreshing kind of sleep, when that actually isn’t the case. There are three phases of non-REM sleep that happen before most of us hit REM, about 90 minutes after drifting off. Those stages are essential for immune system strengthening and repairing our bones and tissues. REM sleep is when we dream, and often when our brain processes information we didn’t during the day.

In short, someone with narcolepsy is generally sleepy all day long. And all night, unless they have insomnia, which is also possible, but I’ll talk about that in another post.

Backstory:

Because this is all new to us, I’m going to document our journey as it goes along. To start, here’s how we got to this point.

In 2013, BF (that’s my boyfriend), was diagnosed with ADHD. He was in a doctoral program at the time, graduated a high level university with a big degree in 3.5 years, and graduated with a high GPA in high school. He didn’t fit all the bill, but he had a hard time paying attention, and staying awake, in lecture. So we went with that.

He tried Adderall, which made him like the hulk. Not physically, though he is strong, but in a “I have too much intense energy and this is bad.” kind of way. Then onto Concerta and Ritalin, which helped. He was on 27mg of Concerta with a booster of 10mg of Ritalin at night after the Concerta ran out its 12 hours. (Though it doesn’t work this long for everyone)

Fast forward – he was still experiencing a fair amount of anxiety, so ended up going off of Wellbutrin, which he had been on for a couple years, and onto Lexapro. That did the trick – no more anxiety.

But then he was still reallllllly tired.

He would come home from work and sleep before eating dinner. Then would eat, and then fall back asleep. Weekends would be sleep-a-thons with lots of napping. And he just always felt crabby and tired. He couldn’t get his work done at a pace he was happy with, and had a hard time staying awake for conversations. We weren’t sure what it was, so we were just riding it out.

Diagnosis:

Then one day he fell asleep driving to work, and almost went in the ditch. That day was the end of guessing. He went in to see his general practitioner, who mentioned that he might have narcolepsy. He’s already been treated for sleep apnea, so we got his CPAP numbers checked at sleep med a week later, which were fine, and got a formal narcolepsy diagnosis. Thanks Mayo Clinic!

He also has cataplexy, which means when he feels a strong emotion, his muscles go weak. We didn’t know what that was at all, and thought it was funny that he would fall down when getting scared. (think fainting goats) But, most people who have cataplexy, if not all, have narcolepsy. So we got a name for that too.

Treatment: 

He was already taking stimulants for what now is likely a void ADHD diagnosis, so that dose was doubled to 54mg of Concerta with a 20mg booster of Ritalin in the evening. His doctor said that most people with narcolepsy take a bunch more than that, and he’s certainly not awake enough now, so we’ll see where we go on this front moving forward.

Because we requested that he be able to sleep well and not just be pretend awake his whole life, his doctor wrote him a voucher for Xyrem. It’s one of the most protected drugs in the world, and is often known as the miracle drug for people with narcolepsy, allowing them to hit non-REM deep sleep stages. We’re two weeks into a discussion with the drug company and insurance right now. It is delivered straight from the company, and has to be signed off on by many people before it is delivered to the patient. Stay tuned for updates.

——

I think that’s long enough for now – no one likes overly long posts! I’ll write more soon. If you have any questions or would like any more details, please comment or send me a message!

…because love wins.

 

 

Why you should let people go.


A little while ago there was an app called “Who Deleted Me?” It was designed by Anthony Kuske, whose Twitter profile says he’s from the UK and “makes websites and stuff.” This app was one of those things. The purpose of said app was to do just that – tell people who had deleted them on facebook.

Facebook is a weird, strange, awesome, and dumb thing all at once. We get to connect with anyone virtually anywhere around the world. But at the same time, we can also see all kinds of things that are left to our own imagination. Because let’s be honest – no one is as happy as their profile picture all of the time. And thinking they are can ruin your life.

So then what do we do when one of our used-to-be best friends decides they’re done and we’re not friends anymore? And then what happens when you find that out through a crazy little app? Well, if you cared, it probably sucks pretty badly. If you don’t, you’ll probably have an easier time with what I’m about to say.

If someone doesn’t want to love you, or be your friend, or doesn’t build you up even when they are your friend, it’s time to let them go. Yeah, not that easy, right? Well, it sort of is.

Why would you want to be friends with an enemy you have? Would you call up the kid who picked on you in second grade and ask them to be your best friend? No, I certainly don’t think you would. Sorry to say, but when your friend walked away (and in a dramatic way like a facebook delete to prove a point without a real conversation) they entered the same category. Either they didn’t appreciate you, or they think they will have a better life elsewhere.

I’ve had people die in my life, and I’ve had people walk away. When I was younger, both destroyed me. Now, only death hurts me. Because I only keep camp with the people who I really know love me and who will let me love them back. And it’s okay to know that someone walking away isn’t your fault. It’s the walking person’s fault.

So, if they walked away, don’t chase them. And don’t let them come back. If they cared, and they were someone to want around, they never would have left to begin with. You’re worth more than being someone’s option. They chose to have you let them go, so let them go. And don’t apologize for knowing your worth.

Strong is beautiful – you are beautiful. Smile and do something you love. Because you weren’t worth letting go.

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…because love wins.

Why it’s important that you’re healthy.


Today’s challenge in the 40 day challenge is to use something that God has blessed me with to bless another. I’m not a painter, so I’m not going to paint, but I really do love to write, so I’m going to do that. Hi. 

I lived a lot of my life depressed. I’m not exactly sure when I got depressed, but I know when my first real bout of depression came in. I was 16 and my whole life flopped on it’s head with breakups and deaths and cancer. And I thought I had it all together. Haha. No way man. So I basically fell apart. 

I knew that I was depressed. I got out of it. Started biking hundreds of miles per month and eating everything that could possibly help. I was in the sun probably way too much, but I made it. I’ve been aware since then that it’s something I needed to pay attention. I kind of survived college, though there were quite a few days where I thought International Finance 440 was going to be the death of me. Not sure if that was the reality or the depression, but I digress. 😉 

But, living years with depression even though I knew that I had it changed some pieces of me. Namely, my understanding of relationships. I was blessed with many healthy friends, but I also tended towards very unhealthy people. People who had enough issues that I could either a) try to fix them and feel needed and therefore not lonely, or b) know that I was going to feel okay because at least my issues were inside and no one could see them. (thanks, depression.) 

Fast forward to now. I was treated for my depression in January of 2013. It’s changed everything. I can sleep well, I can accomplish things, I can get places on time. And I can catch my brain when it goes off the deep end. But there are still those things that I need to re-learn. 

This is a time of health in my life. Attaining good balance, learning what healthy relationships look like, and mostly, demanding how I should be treated in life. There were plenty of people who manipulated and used me because I allowed them to in my life. They didn’t intend to – they were ill, but I was needed and it filled my emptiness, so I let it happen. But then all of a sudden a person (that’s me) wakes up and decides that they don’t want to live a stinky life like that anymore. 

So now here I am. People obviously aren’t going to be perfect all the time, but if you don’t demand that you treat yourself in a cherished way, and also demand that of others by not allowing them to abuse you, then it’s always going to be that way. You have to stand up for yourself. You have to know that where you are weak you cannot allow others to punch you in the heart and make you bleed. You have to know that this is your life and it’s so important that you’re healthy. You are alive, and therefore are allowed to live a beautiful, happy life. And not everyone will suck. 

Also, if you’re anyone who has someone who allows you to call them names or yell at them or immaturely deal with issues in your life and they’re not standing up for themselves, realize that you’re probably unhealthy too. And it’s time for you to get help as well. 

Here’s to being healthy, and being healthy making other people healthy. Just because other people are hurting doesn’t give them the right to hurt you. And just because you’re hurting, it doesn’t mean you can hurt other people either. 

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…because love wins. 

Glow


Glow

So many lights on in this city,
but people still walk in the dark.
I watch them as they’re passing by me.
I hide the truth inside my heart.

Cuz I’m afraid to lose control.
I’m comfortable.
But there’s something in my soul,
they need to know.

Shine, shine, shine tonight,
it’s time to let it show.
Burn bright;
light the fire that leads the way to Hope.

The Maker of the stars
lives in our souls.
We have His light,
so what are we waiting for?

Get out and glow.
Glow Glow, GLOW! 🙂

A city on a hill can’t be displayed,
until we take our faith;
set it ablaze.

It’s time to glow. 🙂

…because love wins.

This is what depression feels like.


Wake up.
Crap. I hate this. I don’t even want to get up. 
Lay there. Try to sleep again.
Can’t sleep. This sucks. Why even get up? I hate everything anyway. 
Alarm goes off again.
Just…no. 

Deep breath.
Well, I have to. People expect it. But *sigh* nothing is good. 

The feeling sinks more in as the tired wears off and the reality that there is no energy to come shows up again. Another day, after another night where you thought you’d go to bed and wake up okay. Another morning where you cannot understand why you can’t get it together.

I don’t want to brush my teeth. 
Sit on couch. Stare out window. No thoughts.
I can’t brush my teeth.
Lays back down.
Please, don’t let anyone come and talk to me.

Mom shows up. “Time to get up!”
She makes me so mad, but okay.

I can’t do this. 

The fog grows darker and darker as you realize that you haven’t the strength to even get dressed, let alone try to put on a disposition that you care about something in the world. The fog that takes away what you do enjoy, and leaves you begging to just enjoy something again.

Get dressed from the unorganized clothes.
I’ll get to those tomorrow. 

Work.
Come on brain, concentrate. Please, just concentrate. 

Rubs eyes.
Can’t concentrate. WHY CAN’T I THINK!? 
What’s even the point? 

Tears.
Phone call to mom.
I can’t do this. 

“You can do this.”

I can’t do this. I can’t do this. I can’t do this. 

The walls start to crash in. You feel like an idiot because nothing is wrong, but everything feels dead, teary-eyed, and purposeless. You want someone to call and check on you but you couldn’t speak with them even if they did. You’re just…exhausted.

You make it through another day, somehow.

Go home. Empty house. Feels like your heart.

Who cares about TV? Why are there always so many dishes? I hope no one calls. I have to try to get this house in order. 

Sit on couch. Exhaustion piles on thick. Tired eyes, no reason to stand up, achy body, and every negative thought ever.

You won’t be able to do this. All of your friends are going to leave. Your family won’t want to be around you. You can’t be real with these people or else you’ll just sit here like this really alone. You’re a mess; get it together. 

No dishes, no cleaning, just begging for bedtime. But knowing 7pm will always be too early. Lay there awake and in aching misery for a while more. Cry, if you’re not too tired to.

Please, God, let it be better tomorrow. 

——

I find that a lot of people have no idea what depression feels like. Oftentimes, it’s a joke. “Why don’t they just get over it?” “Why don’t you just be thankful for some things?” “Clean your room; open some blinds!” “Just call a friend.”

But I just couldn’t. No one with serious depression can. In all honesty, to have depression and not kill yourself sometime during the day is a huge feat. And it’s not pretend. It’s devastatingly real. So real that I would rather go through every day of chemotherapy and amputation instead.

People who stay alive in this aren’t a mess – they’re stronger than you’ll ever know.

So here’s to hope. If you don’t understand depression, please do. Know if your friends and family are depressed. If they’re not calling you back, it might because they need you to go to their house and help them. Clean their house until they can do it again on their own. Never tell them they’re a mess – they’ve already got all the problems evident enough.

If you do understand depression, and you’ve been there, you’re not alone. You are never, ever alone. I know how you feel, and I now, for the first time in my entire life, am not fighting the negative screaming in my head. I’m alive, and you will be too.

Just comment here if you need help. I can help you know what to do.

Don’t give up. You are not ever alone.

…because love wins.

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