Glow


Glow

So many lights on in this city,
but people still walk in the dark.
I watch them as they’re passing by me.
I hide the truth inside my heart.

Cuz I’m afraid to lose control.
I’m comfortable.
But there’s something in my soul,
they need to know.

Shine, shine, shine tonight,
it’s time to let it show.
Burn bright;
light the fire that leads the way to Hope.

The Maker of the stars
lives in our souls.
We have His light,
so what are we waiting for?

Get out and glow.
Glow Glow, GLOW! ūüôā

A city on a hill can’t be displayed,
until we take our faith;
set it ablaze.

It’s time to glow. ūüôā

…because love wins.

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In the Hall of Fame.


ImageOften in life, as a leader of many who is also a young adult, I’ve had a lot of lash back. Not that people didn’t like what I was doing, or didn’t want to walk alongside me, but that people often times didn’t (and don’t) believe what I am saying or that why I am acting is genuine.

But the reality is, even in this broken world, some people are still honest. And some people really do still care about you. And they don’t do things half way. They are loyal. They will come in the middle of the night – probably with your favorite tray of cookies.

And they aren’t here to push you under or away.

In the midst of bombings in Boston and explosions in Texas and entire countries unaware of the outside world because of tyrants, be a sparkle. Be a light. Don’t let people who aren’t genuine make you think that you can’t be either.

It’s that kind of thing that gets you in the hall of fame.

…because love wins.

How to be happy.


1.      Enjoy simplicity.

2.      Smile as much as possible.

3.      Live for today.

4.      Love each other.

5.      Watch the sunset.

6.      Read hundreds of books.

7.      Listen to great music.

8.      Love yourself.

9.      Learn from your mistakes.

10.  Understand that no one is perfect.

11.  Eat ice cream in summer.

12.  Build a snow fort.

13.  Act like a kid again.

14.  Take nothing for gratnted.

15.  Live up to your expectations.

…because love wins.

Meet Kaden Tjossem.


This is Kaden.

You may remember him from a previous blog post. He’s a very old 5 years old this year. I met him a little over a year ago, when he was diagnosed with Osteosarcoma, the same cancer I had 14 years ago. The cancer is a rare form of bone cancer and resulted in us both having Rotationplasty.

He allows me the time to be a part of his life and laughs with me while we play. He fights strong, he’s kind, sweet, and loves his parents. He is a pro video gamer, and has learned to walk as well as me at the age of five. He’s the hero of many, and he is the version of honest that makes the world’s hearts smile.

This Thanksgiving, Kaden is still battling his cancer hard. After it came back, he told me that it was, and that he didn’t want to have to be in the hospital. He wanted to play with his puppy and be a 5 year old. I want that for him too.

You can join in prayer and encouragement of Kaden’s journey by following their new page on facebook:¬†Prayers and Love for Kaden. Kids should not have cancer, and while we work on fixing that, let’s also work on making sure these families facing this atrocity never do it alone.

This holiday season, give your joy and prayers, away.

…because love wins.

*Kaden and I met through an organization near and dear to my heart, Brighter Tomorrows. Feel free to find out more about non-profit here.

An ode to my 5 year old battle partner.


I walked down the halls of the children’s hospital carrying a small prosthetic leg just 17 years smaller than mine. Its owner and I have almost everything in common.

We know how to be out of control.
We know pain.
We know joy.
We know what it means to understand how terrible cancer is.
We know why kindness matters.
We know why our stuffed animals are so important.
We know why we tell our moms we love them.

We fight in the same army.

The owner of this leg rode in his wheelchair right next to me. Standing no higher than my hip, he is my battle partner on this open field of colored tiles and IV poles. In a war in which we fight with the best armies the world can offer. Those who arm us with research, chemotherapy, prayer, hope, strength, and willpower to move forward.

In a war in which we fight alongside each other against that cancer within us.

Our battle cry is this, childhood cancer:

Take our legs – we can do it.
Take our hair – we can do it.
Take our sleep – we can do it.
Take our dreams – we can do it.

You can take our everything.

Except our hope.

We will not, ever, at any moment, give up our hope. We guard it within one another, and it simply cannot be reached. Its protection is¬†invincible¬†as we walk hand-in-hand or wheelchair in wheelchair carrying each other’s dreams and wants and favorite video games.

For you fight for my life and I fight for yours, battle partner. You make me smile though tears and I tell you it won’t hurt forever. And there is no force stronger than two deep hearts saying no to that cancer.

But to my battle partner, if there comes a time when we must let go of our hands held so tightly, we will still never be apart. For when in war it doesn’t matter where you are; you are never left behind – and always held in the heart.

…because love wins.

It’s hard to find people who get it.


We were never meant to do childhood cancer alone.

If you or your child were diagnosed with cancer today, would you just want something to read online, or would you want also want a person in real life who can help? I know it’s the latter. Because I’ve been there.

I can help with that.

When a family googles “Childhood Cancer” I want my name to come first, so that they may have someone to talk to who can point them in the direction of a person with the same kind of cancer in the same part of the world. I know well enough people to ¬†make the connections, but I need you to spread the word.

The GOAL for the next three days: Get 5,000 facebook “Likes” here:¬†https://www.facebook.com/ShannaDecker¬†and ONE MILLION Twitter followers at https://twitter.com/Shanna_Decker! But¬†I need your help!

Share share share share the facebook page! And then be sure to ask your friends to share it Рit needs to go viral! And, #5000forcancerkids on Twitter. Then link to this story or http://www.twitlonger.com/show/jsk2td. Remember to ask people to RT and spread the word!

You are helping raise awareness. YOU are helping families not have to do this alone. Because it’s easy to find something to read. It’s not as easy to find people who just get it. Who, for that matter, can tell one what to read as well. ūüôā

Please do all you can to help us!

…because love wins.

One second of your time to heal a life?


I have a new goal: 5,000 likes on my professional facebook page (https://www.Facebook.com/ShannaDecker), and ONE MILLION Twitter followers so that when families with childhood cancer are looking for healing, they come to someone who has walked this road before them.

A simple image of rotationplasty. Check out videos to see how a prosthetic makes this work!

It’s simple – there are a lot of resources, but not as many people who understand childhood cancer and amputation long term. I have a rotationplasty – my leg is backwards. You can see videos here:¬†http://www.becauselovewins.com/media.php?type=2¬†I have had chemo, been in a hospital for nearly a year, major surgery, asked all the questions, and watched my best friends die.

And I want one thing: to let those doing this after me know that they are not alone. To point them the right direction. To help them heal.

Please help me reach them. I need 5,000 likes on http://www.Facebook.com/ShannaDecker, one million Twitter followers! You can share it on twitter with #5000forcancerkids! and http://www.twitlonger.com/show/jsk2td.

The aim here is that search engines find me first when families are searching a midst childhood cancer and that I can then save them from finding the wrong resources – give them the right direction right away! The aim is to give them hope. To be their hope.

Won’t you help me? ūüôā

…because love wins.