Category Archives: Rotationplasty

“I feel bad.”

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It’s late and I should be sleeping, but there are just moments in life that ask to be written about.

Tonight was a Brighter Tomorrows night. Those who know me know this is my favorite night of life, every single time it happens. Those who don’t know me now know that it’s my favorite. Moving on.

We had 37 kids RSVP. That’s amazing to me. I don’t want kids to have cancer, but if they do have cancer, I do want them to come to Brighter Tomorrows to play games with us, to laugh with us, and to have summer camp with us once every month.

One conversation (among the many that are seriously the most inspirational things in life) tonight struck me and just keeps playing over and over again in my head. That’s why I am writing and not sleeping.

There is a 7 year old boy with Ewing’s Sarcoma, a rare form of bone cancer. I know most of his story because I’ve read it, met his family, talked with others who know him. But he doesn’t know that. He just thinks I know him for him. So we’re making some crafts and I mention that he still has his port accessed (most of the time kids don’t leave with a line in if they are just going for chemo) and I ask him why that is. He tells me that it’s for radiation and goes on to explain the burns that he has from it.

He rolls down the edge of his comfy pants, and I see the red line where that burn starts. I ask him casually if it hurts (because to him, cancer is casual and a part of life…I remember) and he says “Nope, not at all.” I’m sure at some points it does because his skin is all a deep, deep red and has a rough look to it, but he gave me the right now answer which is technically what I asked for. (Kids are amazing and I love them.) Then I go on to explain to him that I had cancer as well. I explain my leg and why I didn’t need any radiation and why he does but how we are similar. And then he listens and he and his brother start asking questions.

“Do you have a scar?”
“Yes, one here and here and here.”
“How did they hook it back on?”
“With a plate and screws.”
“So you have metal on you?”
“Well, sort of. Technically I have metal in me.”
“Does that hurt?”
“Nope, not at all, and it keeps my leg on there safely.”

We giggle.

He persists…

“Does it hurt to wear your leg?”
“Nope, it’s made just for me.”
“So your foot is just in there like that, huh?”
“Yes, just like you’re doing it!”
“Wait, so you lost your hair!?”
“I sure did.”

He stops.

“I feel so bad,” he says.

I tell him not to. He tells me he feels bad for me. I tell him I’m okay and everything is good and life is great. He insists that he feels bad for me.

Life is about perspective, my friends. Look without yourself.

…because love wins.

Weddings are dreams…if you do them right.

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I got married this weekend!

Everything everyone says about the day going so fast, but being so beautiful, is right. Everything they say about being madly in love being intoxicating, is right. Everything they say about the great blessing of being surrounded by the people who love you, and who you love most, is right. They’re all right. It’s magical, but it’s only magical if you do it right. It’s only right if you’re marrying who you should marry. And if you’re upholding marriage until it’s time for marriage.

The most magical parts of our day were not the flowers (even though they were beautiful!), or the candles (which I got from the dollar store and that didn’t burn right…not that I noticed – I heard from my people), or the hair, or the makeup, or the suits. It wasn’t the “rager” we had after (the whole thing was over by 10pm), and it certainly wasn’t the tight (although also beautiful) dress I was wearing.

What was magical was Jesus. Jesus, who picked us for each other. Who made a love story out of our resistance (see any other blog post from before this about how we thought our lives should go). Jesus who changed us like water into wine, and Jesus, who was our first love. Jesus, who taught us what love is. Who teaches us what love is. Jesus, was the magic. Jesus, is the magic. Today is magical. Because marriage is Jesus’ and it can only be done as marriage, with Jesus. The rest is a sham.

Ray and I didn’t freak out about details while planning. We laughed a lot. We learned how to tie bows, and he got to watch me wander around Hobby Lobby a lot and grow his patience. We made time for our families and extended leases so that we didn’t have to live together before our marriage. We cried in the last three years as we lived in different houses, and states, and had surgery and almost cancer diagnoses, ER visits, hair loss, reconciliation of pasts, and figuring out how to fit into a new life. And we did it all together. It wasn’t easy, and it was magic too. This time with each other and Jesus, was our magic.

One of my two most favorite moments of our wedding was walking down the aisle with my father to greet my groom. After three years of up and down and changing as a person with him, there is only one person who could ever have compared to the love that my father has for me. I was proud of the man I was marrying. I was so blessed that my dad loved him so much and how much he has laid down his life for me. I am thankful that my father taught me to wait for the man who could make my life magical.

My second favorite moment, was when the man of my dreams cried while dancing our first dance with me. I have a hard time dancing – mostly because I am a white girl, but also because I have a prosthetic leg. While most people are busy working on shows for their first dance, we practiced me following him so that I didn’t step on him or my dress. It’s a vulnerable point for me. And it’s a space of challenge that only he could have worked himself into. He led me like the man of my dreams who knows exactly how to let me be independent while empowering me by holding me up in ways that people do not see. He has done physical therapy I didn’t know I needed, and he has wrapped up the broken pieces of my heart into one whole piece.

But he couldn’t do that without being led by Jesus. Half of the letter he wrote me before the wedding was Scripture. Wait for the man who doesn’t just give you himself. Wait for the man who unashamedly laughs with you while you plan for your wedding, who cries on your shoulder because he thinks you’re the most beautiful person in the world, and wait for the man who gets up the Monday after the wedding to go to work so that you can rest. Wait for the man who gives you Jesus.

Wait for the magic. Wait to see your groom until you walk down the aisle (pictures can wait until after). Wait for him to stand up and be a man. Don’t marry someone for the flowers. They will fade. Don’t marry someone for the candles. They won’t stay lit. Don’t marry someone for the sex. Married sex is the only sex that counts, and it’s not about the sex. Marry the person who you can let into the moments that make your heart break.

Wait for the man who will spin you around in front of a room of people because he can’t decide if he wants to look at you, or hold you close. Wait for the magic. Do the wedding right – it’s easy to do when the marriage is right. Wait for the right dream come true.

This is our first dance song. Here are the lyrics. Please listen and read. It is what we want people to see of our lives, which is why we picked it. The first verse is me (speaking to 25,000 this summer) and the second is him. And we have learned…nothing matters…but looking like love, Jesus, to each other, and to the world.

I hope everyone who was able to come and those who we know see that, and only that, in our wedding – and in our marriage. In our forever.

The marriage was worth the wait. The magic was worth the wait. Ray was worth the wait.

More Like Love – Ben Rector: Click here to listen

I use to think I wanted to be famous
I’d be recognized out in a crowd
But the funny thing is anytime I’ve gotten what I want
It lets me down

But now I just wanna look more like love
I just wanna look more like love
This whole world is spinning crazy
And I can’t quite keep up
It’s the one thing around here
That we don’t have quite enough of
So I just wanna look a little more
Like love

I used to think I needed all the answers
I used to need to know that I was right
I used to be afraid of things I couldn’t cover up
In black and white

But I just wanna look more like love
I just wanna look more like love
This whole world is spinning crazy
And I can’t quite keep up
It’s the one thing around here
That we don’t have quite enough of
So I just wanna look a little more
Like love

I find the farther that I climb
There’s always another line
Of mountain tops
It’s never going to stop
And the more of anything I do
The thing that always ends up true
Is getting what I want
Will never be enough

So I just wanna look more like love
I just wanna look more like love
This whole world is spinning crazy
I can’t quite keep up
It’s the one thing around here
That we don’t have quite enough of
So I just wanna look a little more
Like love

Like love

…because love wins.

first-dance

 

17 things I learned in the 17 years since I was diagnosed with childhood cancer.

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March 11, 1998.

We never forget the days that change our lives. We never forget the moments that change our lives, as a matter of fact. I had one of those on that day. I haven’t forgotten it. I never will.

I had been walking with a limp for about 3 weeks. I was a totally healthy, vivacious, excited little girl. Here’s a picture!

Age 6. :)

Age 6. 🙂

See? Right? Totally healthy. But that knee pain I had wouldn’t go away.

On March 11th, 7:35am, I was walking to the school bus. About halfway there, I fell down. There was a serious sharp pain in my left knee. I remember thinking I didn’t want to look dumb (classic 3rd grade thought process) and it hurt. A lot a lot a lot. The bus was waiting, and it was a shorter distance to get on the bus than to go home, so I got on the bus. I went through my day, limping along, trying not to walk. I have no idea how I was even moving at all.

We had an appointment scheduled with my family doctor that afternoon. When I walked into the office, he told me that he hadn’t seen anyone ever limp like that. The reason? My femur was shattered. The reason?

Bone cancer.

I was 7 years old. I played basketball and giggled and tried to avoid going to sleep at night.

Cancer?

CANCER?

The next day started 49 weeks of chemotherapy, the removal of my leg and a procedure called Rotationplasty (You can learn about that here.) and way too many sharp needles, anesthesia and brokenhearted moments than I can consciously remember or that I should have had to go through as a human being, regardless of age.

So, in honor of the days that I have lived (happily) since then, I want to share with you 17 things that I have learned since March 11, 1998.

1. Life is short. 
Not in the cliche, “Yeah, people say that all the time…” way, but in the “Don’t wait until someone you love is dead in a car accident before you figure this out.” way. Seriously, it can all end right now, and you need to not worry what everyone thinks of you or feel bad when people don’t like you. Choose the way you want to live those short days and then do that. Live, please.

2. Kids die. 
And it sucks. It sucks way worse than someone who has lived to 80 years-old dying. I’m not saying any one life is more important than another, but I am telling you that burying my best friends (4 of them) by the age of 12 is horrendous and wrong. It’s so so so so wrong. Parents should not have to live all the years their kids were supposed to without them. Which leads me to…

3. There is a pathetic amount of money allotted for childhood cancer research. 
I had 49 weeks of poison (chemotherapy) that potentially ruined my heart, potentially took my ability to have children, and certainly made me throw up burning vomit way too many times. The saddest part is that it’s been 17 years and kids today are still taking the exact same awful drugs. With an 80% survival rate. (Which I would say is definitely much lower than 80.) And they haven’t figured out why a lot of my friends never lived and I did. There aren’t many people who took this stuff and grew into adulthood, so there’s not really a way for me to know what my future related to this stuff will bring. Please help. Follow this facebook page and do what it says: TheTruth365.

4. Haters are gonna hate.
There is a saying that goes something like, “In the world people are going to hate you, and people are going to love you, and none of it has anything to do with you.” People make bad choices when they’re mad or scared or stressed. (Thanks, Frozen!) So be graceful and don’t worry too much.

5. God is everywhere. 
You just have to let yourself listen. Even when the truth hurts. Especially when the truth hurts.

6. Illness isn’t terrifying.
Sometimes it is, I suppose, but for anyone who is the friend of someone with a chronic or serious illness, don’t leave said person or family alone. And don’t be upset if they want space or you say the wrong thing. But answer the phone at 2am, expect nothing, give real hugs, and be willing to be whatever they need.

7. You should love yourself. 
There is a complex that tends to come after someone has been through a near-death experience which includes putting everyone else first. And then putting everyone else first until that person is basically dead from never paying attention to themselves. So it’s good to take care of yourself. Paint and laugh and don’t let people use you. You deserve the best too.

8. I am handicapped. 
Lots of people are. In fact, we all are – face the fact. We all have something really wrong with our broken souls. And I think that’s a really important thing to remember when someone can’t help themselves and you have the opportunity to love them.

9. It’s not easy to talk about pain. 
I’m a professional speaker, but that doesn’t mean that it’s easy to talk through the agony that I experienced. There’s this fine line between people wanting to hear the truth and people thinking you’re asking for pity by sharing what you’ve felt. Pay no attention to those people. If you have pain, talk about it. If they choose not to listen, they lose.

10. People won’t always leave, and they won’t always leave you.
There’s my greatest fear. Now you know that. (Yay vulnerable!) I’m sure this grew from holding my friends’ hands while they died and thinking I would never be fully understood again, but in the years since that and some wonderful people in my life, I have learned that people won’t always leave. And I have learned that some people really really want to stay and love me if I let them be inside my heart. Give people a chance.

11. Healthy food isn’t just a fad. Tubing 2
Having a life threatening illness was pretty awful. But it also benefited me in great ways. Because I don’t like toxins because of that experience, I avoid them. And I am pretty particular about taking care of myself with what I put inside my body. And I know I live a more full, happier life because of it. Eat less Doritos and more broccoli. It’s worth it!

12. Downtime is not wasted time.
I laid in my bed for a really long time when I was sick. Like, about a year. And it’s clear that that time has not been wasted, even though I was doing nothing for 49 weeks. You’re human. Slow down. Life will come to you.

13. Sometimes hope just doesn’t feel real. 
There will be times in your life where you can’t hope. Where you realize that the thing that you have been hoping for for so long just isn’t going to happen. And that’s okay. Give up, cry, get mad, do whatever you need to do. Just because we don’t think there is hope doesn’t mean there isn’t. And it doesn’t mean that the days won’t get brighter again. They will.

14. Tie your brain to your heart. 
If you want to do something that really helps people, don’t just dream. Figure out what skills you need to tangibly do the work. For example, if you want to travel the world and feed homeless, start learning languages now. If you want to start a business, learn how to start a business. And then put your heart into your intellect.

15. Don’t take boredom for granted. 
I remember being 15 and telling my parents I was bored. But then I realized that I may be bored because my life is just okay at that time. And it’s not falling apart. And that means there’s goodness – and that’s not boring at all.

16. Bad things can still be bad years later, but they don’t have to rule you. 
I realize that there are some things from cancer which totally left me with PTSD. That’s the reality for my life, and I’ve accepted it. That’s pretty lame, but so are tsunamis, and I haven’t been through one of those. And some other people have to accept them in their lives. So it’s okay to not like things that happened to you. But that doesn’t mean they are in your now, or that they will take you down. Nah, there’s always healing, and always growth. And you’re good now. Just learn and live.

17. Jesus loves you. Jesus
I have tried this one out. I have searched the depth of my heart and society many times. I have watched people die, kids without parents in hospitals, and kids around the world who have no medical care and die just because of that. And there is still love – and love is the currency we should really use. Jesus is the only way to God, and there is one God, and He is Jesus’ father. And you know what? Whether you know it or not, He loves you. And He’s going to come back. Don’t wait to talk to him until your life doesn’t make sense anymore. Someone will always, always love you.

Here’s to 17 more years!

Love to you all.

…because love wins.

I must dance. You must dance, too.

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She stands behind the curtain, looking at the piercing eyes in the crowd. She could back down, she could hide from the stares and the judgement, and the knowledge that she will inevitably mess up this routine. She will probably fall. It won’t be perfect. 

And they expect perfect. 

“Can I do this? Will my leg even hold out? I haven’t ever tried such a thing.” 

“Dance,” God says. 

“But how?” 

“Dance with me,” He says again quietly – strong. In a way that almost demands to be trusted. 

“No one taught me how. I can’t dance like everyone else.” 

“But you follow the beat I put in you. You need to dance. You’re My music.” He whispers. His eyes are strong – confident. 

“I can trust Him. He knows my steps,” she says to herself. 

—

Out she steps. 

Just alone out here. 

The music starts. 

A slow, gentle, beat, as she has learned like should be – slow and gentle. 

One step, and then another. Some quick steps. A magical spin under the moving orange lights. The air is crisp, and the audience silent. 

She starts to see the life events show up on the dance floor. 

A sick child – she floats to take his hand, and brings the music to him. Soon he is smiling a most magnificent smile. 

An illness in the family – she ducks for the challenge it is to get to that ill person, but finds that music unlocks the doors to stop her from helping. Healing comes in a brilliant soft white light.

Jobs, pain, rainy days – No need to face them. They resolve themselves as she floats around them and her light shine upon them fast. 

And it occurs to her – 

“I dance to my own life. That’s my own beat. I know exactly how to dance. My life is my dance. He made this. I cannot fail if I try.” 

—

God steps out onto one side of the stage, opposite of where she took her place. She sees those obstacles that are life between her and Him. But she also sees that wherever He steps, those obstacles minimize to a beautiful piece of the stage – highlighting her special steps in brilliant colors. Her favorites – making her dance more freely still. 

He guides her. A hand motion there, a step there. Pointing, carrying, dancing right along. 

She’s forgotten all about the people who were once her fear, and her eyes, heart, and soul, are locked with Him. 

—

The stage is now covered in the most beautiful flowers. Open paths. Wide spaces, where she is entirely free. The obstacles are gone. And as He spins her like she spun as a 2 year old, He gestures to the audience. 

She stops, and takes a step towards them. The lights come up on those faces. She gasps a soft breath. Every single one is someone who has come alive because of her dance. They were strangers at one time, but she now sees them all clearly. 

Best friends. Acquaintances. Used-to-be enemies. Mom, dad, kids, boyfriend.

Everyone someone she has danced into the life of.

This is her life. This is her stage. It’s important.

And it’s magnificent.

—

She beams, and takes a seat on the edge of the stage. God stands proudly and in a lovely way behind her. Tears fill her eyes. She didn’t know how to dance, she thought. She didn’t know where she would step, she thought.

“But He made the music in me know where to dance.”

“And it was the performance each of these souls needed to see to bring them to life,” He says.

—

And she knew from that point forward that our purpose in life is to dance. To dance, just as we know how. And we all learn together with each step. 

Our lives are His symphony.  

…because love wins.  

12 Ways to Maintain a Bad Attitude for Your Whole Life

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So, today is one of my best friends’ birthday. His name is Dustin. He and I had the same kind of cancer in the same leg when we were little. I was 7, and he was 11. We did everything together – played, talked, threw up, had major surgery; everything. He lost his leg to the cancer, and a lot of his lung. And so did I. But we also have a lot of photos, and we’re smiling in them. Because our mothers and selves, decided that regardless of what was going on, we were going to be positive and enjoy our lives. Dustin died when I was 12. He was sixteen. Our attitudes are still positive.

In honor of his birthday, I’m going to get on my soapbox and preach about the ways we maintain a bad attitude and waste our lives.

1. Wait for everything to be perfect. 
What does that even mean? Perfect changes every day with the color of your skin, the latest fads, who you meet, what you process from your childhood, and the kind of house you just saw on TV. I will just blow that up for you now – it’s only as perfect as you make  it. Fiercely look for the positive in situations. And it would be wise to get used to life being a mess. Because it always is. Put on your best shoes, get ready to get them muddy, and jump in to see what happens.

2. Quit before you see the ending. Aka, avoid at all costs.
This lines up pretty well with number one. This whole world is full of quitters. When you have cancer, you don’t really get the choice to quit. It decides for you. Life should be like that. Cuz when you’re dying it will be. And I will tell you that walking away when someone needs you, when you’re afraid, or when you feel like you’ve failed is an excellent way to make sure that no one ever needs you, everyone is afraid of you, and to fail yourself, and others. Just stick around even if you don’t know what to do. Life has a way of working itself out if you leave your heart in it and bring your good attitude.

3. Hate yourself.
Most specifically, I mean get up every single morning and look in the mirror. Find every piece of your body and mind that you hate, recite every word that anyone ever said to you about how you looked, and then work to combat them with changing your clothes, combing your hair, and all around aiming to be whatever level of perfect they set for you. THAT IS DUMB. Every single person in this world is busy living up to some standard of someone. All the while, the person who set the standard is trying to live up to someone else’s. IT DOESN’T MATTER. You’re a soul. Just go fly, soul. Haters are always gonna hate. But it’s because they hate themselves. There’s no need for you to hate yourself too. It’s really not so great to fit in with all the people who already hate themselves.

4. Take your aggression out on others. 
In the house in which I grew up, we were allowed to be whatever mood we wanted to be. We were not, however, allowed to hurt other people because of our mood. So if I was mad at something, I didn’t get to redirect that at the safe place – my mom. I mean, I did, for a while, until one day she just looked at me and told me she didn’t like me anymore, no matter how much she loved me. She’s a great mom, and that was a pretty swift wake up call. If my own mother didn’t like me, there is a good chance that no one else would either. And it wasn’t her fault. (She again likes me after I stopped being mean.) People are not punching bags. They are not responsible for your happiness. I mean, if you’re happy, unwaveringly lift people up. Don’t quit. (see above) But for your aggression, find a real punching bag if you need to. And then go punch it until the emotions are taken down enough notches to have a real conversation with someone who will share wisdom with you. But leave your walls with the punching bag and let go of your aggression. Being mad about someone or something doesn’t do a thing to them…but it ruins you and your life. Also, anger isn’t a safe place. It’s a lonely place.

5. Never take ownership for your mistakes. 
This is a perfect way to pretend that you’re perfect. And it’s a perfect way to keep everything locked inside like poison. Every person you hurt will carry that hurt because you have legitimized the mean things you did to them. They’ll think of your bitter words when they look in the mirror in the morning. Being disconnected from your reality is not okay. That’s a great way to continue to be disengaged and distant. Because you know, even though we all pretend we’re perfect on facebook, we’re really not. And no one really likes someone who thinks that they are and can do no wrong. No one likes to get blamed for someone else’s pain all the time either.

6. Always blame everything on everyone else. 
This is a great way to continue to never take ownership for your mistakes. The guy at the grocery store didn’t smile at you. What a loser. So negative. Your mom didn’t call you soon enough on your birthday. Work was challenging because your coworker was mean. Your toe hurts because you hit it on a curb and the city built the structure wrong. We can all pretend that we don’t do that, but oh, we do. And the thing is, you see what you want to see. And you see what you feel. So pay attention. If you’re blaming the whole world for your pain, it’s probably because you’re putting yourself in that painful place all on your own.

7. Never let anyone love you.
We all have bad attitudes because people don’t love us, right? Wrong. We have bad attitudes and that makes us hard to love. How are you in any more trouble than the rest of us? We all have our hard stuff. And just because it’s hard and someone or something hurt you before doesn’t mean everyone is going to be a twit and hurt you again. Or they might. But that’s how life works. It’s better to love and get hurt than to live in the lonely place where you keep yourself. People just want to help. You have to let them. And be prepared – they may not help just how you want them to. But it may be how you need them to.

8. Never listen. 
This is an excellent way to be in a bad mood forever. Never listen to what anyone says. When they’re talking, always be thinking about how dumb what they’re saying is and be waiting for your turn to talk. Because obviously that’s what needs to happen for you to feel better. Wrong. People hate people who don’t listen. And that’s a good way to make sure that you never have anyone to listen to you again. Yeah, you need people to lean on, but you might learn a lot if you hear what they say and apply it to your own life.

9. Always think about yourself. 
You’re walking down the street. What are you thinking about? Yourself? Well, stop it. Just, stop it. Think about anything else. The trees. The water. People who need prayer. Your shoes. Jesus. Anything. I promise that the more you think about yourself, the worse your attitude is going to be. Life comes from helping someone. When things are hard, go help someone else. Call a friend and ask them how they are. Do anything but think about yourself and what you think you’re missing in life.

10. Never be pleased. 
Always let your emotions lead what you say. Never speak out of logic, only emotion. Complain whenever you can. That the food doesn’t taste good enough. That the service isn’t fast enough. That your hair isn’t nice enough. Whatever you can complain about, DO IT. I’m totally kidding. Stop complaining. You won’t feel better doing it. When you’re about to complain, stop. Whatever it is you were going to complain about, find something positive to say about it instead.

11. Don’t be thankful. 
This is an awesome way to be in a bad mood always. Don’t be thankful for stuff. Always focus on what you don’t have and never on what you do. Also kidding. Stop doing that. Focus on the positive. Don’t think that you’ll be ignoring all your sad thoughts and that they’ll build up or something. No. Just fill your mind with good things, and the negative will come to the surface manage-ably. Whatever it is you’re upset about, stop being upset about it and find something in it for which you are thankful.

12. Try to hide from God. 
This is the capstone here. The best way to have a bad attitude forever is to hide from God. Cuz then he can’t change you, and you can wallow until you die. Continue to think that He can’t heal, that he won’t come through, that if you keep your heart locked up you’re safe, or that you’ve done too much bad stuff. Nah, focus on the truth. And see the positive in Christ every day. I promise you, that will set you free. Your joy will turn into happiness, and pretty soon you’re going to be known for being the person that is happy. And all of a sudden everyone will want to be around you. And that will create a positive cycle for you to live in.

But, it has to start with you. No one else makes you happy all the time. But you can make sure you’re much happier with the way you think. You need to do what you need to do inside yourself. Happy day, all!

…because love wins.

40 days to a Radical Life.

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So yesterday I got quite a few new followers to my blog. (Ohhhh, heeeeyyyyy all!) One of them is a beautiful lady with a sweet blog herself. Here, don’t just take my word for it – check it out: https://laurabrookekeith.wordpress.com/.

She’s doing this sweet 40 day challenge dealio to be like Jesus. And…I’m gonna follow along with her. And do the things myself, cuz I feel like I should. Maybe you want to join me. I think you totally should.

Yesterday’s was this: TODAY’S DARE: The next 40 days are going to be radical… so today’s dare is simple. In Mark 6:21 Jesus invited His friends to go away with Him to rest. Rest is so important in today’s rushed and hurried world. Today, take comfort in something red, a red blanket, woolen socks… anything that brings you comfort and let it remind you that Jesus wants you to commit to R.E.S.T…. Radically Entrusting your Savior To-supply-all-your-needs.

I’ll let you all know how things go. Jesus loves you all.

…because love wins.

It hurts, you know.

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It hurts.

It hurts to hear that my friends are suffering.
It hurts to hear that radiation is burning their skin.
It hurts to hear that they are throwing up.
It hurts to hear that their parents cannot comfort them.
It hurts to hear that they are miles away from their little sisters for weeks.
It hurts to see their hair fall out.
Again.
It hurts to watch their tired eyes.
It hurts to watch them shake in weakness.
It hurts to see them not even be able to do their homework.
It hurts to not even be able to communicate the pain.
It hurts to be here, when they are there.
It hurts to hold their hands as another child dies.
Again.
It hurts to come home and cry.
It hurts to realize that hardly anyone sees this.
It hurts to realize that those who do know, obviously don’t care enough.
It hurts to miss them at Christmas.
It hurts to walk into their empty rooms.
It hurts to have another piece empty in my heart.

Childhood cancer, it hurts much more than you know.

Childhood cancer, it hurts, please know.

…because love wins.

Standing

You’re a survivor and that is amazing.

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Each day older I grow, I understand more the reality of what it means to have survived childhood cancer. As a younger person, it was just a part of my life; I hadn’t seen much else, and I was just too busy playing to understand what it means to still be alive today. But now, I marvel at my leg, my hair, and my beating heart. Let me tell you why.

I stood up one morning. I took a step, and my knee gave out beneath me. I never knew that I’d never walk on that leg again. I ate my vegetables, and I slept full nights, and I was even nice to my friends. I never would have expected cancer. I probably would have just called you a liar if you would have told me that was really going to be my life.

But alas, I couldn’t walk. Soon, I couldn’t eat. I couldn’t get out of bed. Sometimes, I almost couldn’t breathe. To say that it’s a humbling experience to face mortality is just more of an understatement than I can explain. No one can walk to death with you. It’s you, and Jesus, (which is why you need Him), and death. I met myself in ways that I cannot describe.

I remember laying in bed begging God to make the throwing up end. To bring my friends back to life, and to just make it all be okay. And seriously, I don’t even know how I survived. I looked dead almost every day for a full year.

But then I did. I started to take steps on crutches. I made myself get out of bed. Jesus restored my spirit, and I locked eyes with death, and shook my head, “no.” And I just turned and walked away into the rest of life.

I am 23 now, and I feel like I grasp that death didn’t win, but that it sure could have. My fingers move, I can take a deep breath, and I can kiss my nephew. And it’s very much on purpose that I am alive.

The take-away is this. If you haven’t met death yet, listen to what I say. Right now, you’re a survivor, and that is amazing. Don’t take that for granted.

….because love wins.