I’m tired of people romanticizing overexertion. Exhausted is not the new chic. Coffee (though {sometimes} a delicious necessity) is not a food group, and running on fumes is not admirable. Why do we hold pedestals for sleepless nights, break downs and inner turmoil? Are those things really to aspire to? Self care, balance, the ability to know when your body, mind, and spirit need to take a step back. Those are things we should admire. We have to stop blurring the line between ‘commitment’ and self endangerment, because too many people are burning out before they have a chance to truly shine.
…because love wins.
Tag Archives: Speaker
The 25th year!
I think I’ve evaluated that life is often a walk to find the line between remaining optimistic and leading, and being jaded and hiding away. When I was 18, I was like most 18-year-olds and thought I knew just about everything that there was to know. And I did know enough to live through college, collect some awesome friends, do some jobs I love and decide on a wonderful boyfriend. But I certainly didn’t know everything.
It’s amazing to watch little kids look up to me and other people my age. I remember the first time that I realized they expected me to know everything for them. It’s amazing – and somewhat terrifying. But it’s a wonderful thing how loving someone and leading someone teaches you to make up your mind and be what you know you should be. That was one of the most memorable catalysts for growth in these 7 years.
So now I’m 25. I learned a lot since age 18. Here are 25 of those things.
- Eating healthy isn’t a fad. It decides an awful lot about how you succeed in life.
- You don’t know everything. Neither to do I.
- Apologies are real, and if they work, that’s awesome. But sometimes they don’t, and that’s likely not your fault.
- You never, ever, need to apologize for who you are. What you have done, yes, but who you are – no. Don’t. Ever.
- Mental illnesses suck, and are real, but also don’t decide a person’s character.
- I love Justin Bieber.
- God can take it when you’re angry at Him.
- You really aren’t likely going to know what God is always doing, but eventually you’ll make it through.
- Dating people is fun. Don’t be afraid to do that. Heatbreak heals. You’ll grow a lot.
- You don’t have to be friends with people that you don’t like.
- It’s okay for you to say no and have boundaries.
- LOVE YOURSELF. Do things that make you happy.
- Never stop dancing. Especially when you’re sad.
- Your mom and dad are people. They are different than you, and make mistakes. Not everything is their fault.
- Changing poopy diapers is a life skill everyone should have.
- Roommates found on Craigslist can be character building.
- Listen first. And sometimes just listen, if you have no idea what to say. You don’t always need to know what to say.
- Don’t walk away in the middle of an argument.
- Arguments and conflict are okay – learn how to fight fair and express emotions.
- People who look awesome sometimes make big mistakes. And things are redeemable.
- Driving with the windows down doesn’t get old.
- Smile wide, and often.
- Say what you mean. Try to figure out what you mean.
- God holds me so so so close. And I am so important.
- I am valuable, and should be treated as such. So are you.
So there you go. I have lots of cool things planned for the 25th year of my life. And Justin Bieber released a song for my birthday. What a guy. Have a wonderful day, lovelies!
…because love wins.
17 things I learned in the 17 years since I was diagnosed with childhood cancer.
March 11, 1998.
We never forget the days that change our lives. We never forget the moments that change our lives, as a matter of fact. I had one of those on that day. I haven’t forgotten it. I never will.
I had been walking with a limp for about 3 weeks. I was a totally healthy, vivacious, excited little girl. Here’s a picture!
Age 6. 🙂
See? Right? Totally healthy. But that knee pain I had wouldn’t go away.
On March 11th, 7:35am, I was walking to the school bus. About halfway there, I fell down. There was a serious sharp pain in my left knee. I remember thinking I didn’t want to look dumb (classic 3rd grade thought process) and it hurt. A lot a lot a lot. The bus was waiting, and it was a shorter distance to get on the bus than to go home, so I got on the bus. I went through my day, limping along, trying not to walk. I have no idea how I was even moving at all.
We had an appointment scheduled with my family doctor that afternoon. When I walked into the office, he told me that he hadn’t seen anyone ever limp like that. The reason? My femur was shattered. The reason?
Bone cancer.
I was 7 years old. I played basketball and giggled and tried to avoid going to sleep at night.
Cancer?
CANCER?
The next day started 49 weeks of chemotherapy, the removal of my leg and a procedure called Rotationplasty (You can learn about that here.) and way too many sharp needles, anesthesia and brokenhearted moments than I can consciously remember or that I should have had to go through as a human being, regardless of age.
So, in honor of the days that I have lived (happily) since then, I want to share with you 17 things that I have learned since March 11, 1998.
1. Life is short.
Not in the cliche, “Yeah, people say that all the time…” way, but in the “Don’t wait until someone you love is dead in a car accident before you figure this out.” way. Seriously, it can all end right now, and you need to not worry what everyone thinks of you or feel bad when people don’t like you. Choose the way you want to live those short days and then do that. Live, please.
2. Kids die. 
And it sucks. It sucks way worse than someone who has lived to 80 years-old dying. I’m not saying any one life is more important than another, but I am telling you that burying my best friends (4 of them) by the age of 12 is horrendous and wrong. It’s so so so so wrong. Parents should not have to live all the years their kids were supposed to without them. Which leads me to…
3. There is a pathetic amount of money allotted for childhood cancer research.
I had 49 weeks of poison (chemotherapy) that potentially ruined my heart, potentially took my ability to have children, and certainly made me throw up burning vomit way too many times. The saddest part is that it’s been 17 years and kids today are still taking the exact same awful drugs. With an 80% survival rate. (Which I would say is definitely much lower than 80.) And they haven’t figured out why a lot of my friends never lived and I did. There aren’t many people who took this stuff and grew into adulthood, so there’s not really a way for me to know what my future related to this stuff will bring. Please help. Follow this facebook page and do what it says: TheTruth365.
4. Haters are gonna hate.
There is a saying that goes something like, “In the world people are going to hate you, and people are going to love you, and none of it has anything to do with you.” People make bad choices when they’re mad or scared or stressed. (Thanks, Frozen!) So be graceful and don’t worry too much.
5. God is everywhere.
You just have to let yourself listen. Even when the truth hurts. Especially when the truth hurts.
6. Illness isn’t terrifying.
Sometimes it is, I suppose, but for anyone who is the friend of someone with a chronic or serious illness, don’t leave said person or family alone. And don’t be upset if they want space or you say the wrong thing. But answer the phone at 2am, expect nothing, give real hugs, and be willing to be whatever they need.
7. You should love yourself.
There is a complex that tends to come after someone has been through a near-death experience which includes putting everyone else first. And then putting everyone else first until that person is basically dead from never paying attention to themselves. So it’s good to take care of yourself. Paint and laugh and don’t let people use you. You deserve the best too.
8. I am handicapped.
Lots of people are. In fact, we all are – face the fact. We all have something really wrong with our broken souls. And I think that’s a really important thing to remember when someone can’t help themselves and you have the opportunity to love them.
9. It’s not easy to talk about pain.
I’m a professional speaker, but that doesn’t mean that it’s easy to talk through the agony that I experienced. There’s this fine line between people wanting to hear the truth and people thinking you’re asking for pity by sharing what you’ve felt. Pay no attention to those people. If you have pain, talk about it. If they choose not to listen, they lose.
10. People won’t always leave, and they won’t always leave you.
There’s my greatest fear. Now you know that. (Yay vulnerable!) I’m sure this grew from holding my friends’ hands while they died and thinking I would never be fully understood again, but in the years since that and some wonderful people in my life, I have learned that people won’t always leave. And I have learned that some people really really want to stay and love me if I let them be inside my heart. Give people a chance.
11. Healthy food isn’t just a fad. 
Having a life threatening illness was pretty awful. But it also benefited me in great ways. Because I don’t like toxins because of that experience, I avoid them. And I am pretty particular about taking care of myself with what I put inside my body. And I know I live a more full, happier life because of it. Eat less Doritos and more broccoli. It’s worth it!
12. Downtime is not wasted time.
I laid in my bed for a really long time when I was sick. Like, about a year. And it’s clear that that time has not been wasted, even though I was doing nothing for 49 weeks. You’re human. Slow down. Life will come to you.
13. Sometimes hope just doesn’t feel real.
There will be times in your life where you can’t hope. Where you realize that the thing that you have been hoping for for so long just isn’t going to happen. And that’s okay. Give up, cry, get mad, do whatever you need to do. Just because we don’t think there is hope doesn’t mean there isn’t. And it doesn’t mean that the days won’t get brighter again. They will.
14. Tie your brain to your heart.
If you want to do something that really helps people, don’t just dream. Figure out what skills you need to tangibly do the work. For example, if you want to travel the world and feed homeless, start learning languages now. If you want to start a business, learn how to start a business. And then put your heart into your intellect.
15. Don’t take boredom for granted.
I remember being 15 and telling my parents I was bored. But then I realized that I may be bored because my life is just okay at that time. And it’s not falling apart. And that means there’s goodness – and that’s not boring at all.
16. Bad things can still be bad years later, but they don’t have to rule you.
I realize that there are some things from cancer which totally left me with PTSD. That’s the reality for my life, and I’ve accepted it. That’s pretty lame, but so are tsunamis, and I haven’t been through one of those. And some other people have to accept them in their lives. So it’s okay to not like things that happened to you. But that doesn’t mean they are in your now, or that they will take you down. Nah, there’s always healing, and always growth. And you’re good now. Just learn and live.
17. Jesus loves you. 
I have tried this one out. I have searched the depth of my heart and society many times. I have watched people die, kids without parents in hospitals, and kids around the world who have no medical care and die just because of that. And there is still love – and love is the currency we should really use. Jesus is the only way to God, and there is one God, and He is Jesus’ father. And you know what? Whether you know it or not, He loves you. And He’s going to come back. Don’t wait to talk to him until your life doesn’t make sense anymore. Someone will always, always love you.
Here’s to 17 more years!
Love to you all.
…because love wins.
Beauty, beauty.
Your life is your lesson. You can’t change what people say to you, how they handle your quirks and imperfections, or even sometimes what you say when you’re not thinking. But you can learn. You can grow. And you can take everything we learned in school and make yourself the student, and life the teacher. Your life is your lesson. And you’re getting straight A’s.
…because love wins.
You’re a survivor and that is amazing.
Each day older I grow, I understand more the reality of what it means to have survived childhood cancer. As a younger person, it was just a part of my life; I hadn’t seen much else, and I was just too busy playing to understand what it means to still be alive today. But now, I marvel at my leg, my hair, and my beating heart. Let me tell you why.
I stood up one morning. I took a step, and my knee gave out beneath me. I never knew that I’d never walk on that leg again. I ate my vegetables, and I slept full nights, and I was even nice to my friends. I never would have expected cancer. I probably would have just called you a liar if you would have told me that was really going to be my life.
But alas, I couldn’t walk. Soon, I couldn’t eat. I couldn’t get out of bed. Sometimes, I almost couldn’t breathe. To say that it’s a humbling experience to face mortality is just more of an understatement than I can explain. No one can walk to death with you. It’s you, and Jesus, (which is why you need Him), and death. I met myself in ways that I cannot describe.
I remember laying in bed begging God to make the throwing up end. To bring my friends back to life, and to just make it all be okay. And seriously, I don’t even know how I survived. I looked dead almost every day for a full year.
But then I did. I started to take steps on crutches. I made myself get out of bed. Jesus restored my spirit, and I locked eyes with death, and shook my head, “no.” And I just turned and walked away into the rest of life.
I am 23 now, and I feel like I grasp that death didn’t win, but that it sure could have. My fingers move, I can take a deep breath, and I can kiss my nephew. And it’s very much on purpose that I am alive.
The take-away is this. If you haven’t met death yet, listen to what I say. Right now, you’re a survivor, and that is amazing. Don’t take that for granted.
….because love wins.
Dreams do come true.
She steps out into the light. The backstage had been a flurry of hundreds of people milling around.
“Decker, check. Check. Check.”
In 2 hours, thousands of people will enter this auditorium. They’ll come from all around the country. They’ll be in the middle of a fight with their wife. They’ll wish their children could do better in school. They’ll have an autistic sister. They’ll be sad. They’ll be hopeless. They’ll be happy. They’ll understand life, or they won’t.
She stops out there. Says a prayer.
“Abba, it’s not me. It’s You. You have them. You be with them. You dream loud, speak loud, do what you do. I’m just so human.”
She looks down at her leg. Who would have thought that this piece of molded plastic would lead to a headset, singing on stage, jumping up and down, crying in front of people? Well, surely not she. She was just this little girl with doggies on her footy pajamas sitting on the porch talking to her Father.
And a tear falls. One tear, as she looks down at her mom, dad, and sister. Front row, always catching a tear, a hug, a smile, a reminder of who she is.
Who is she that she could speak through an amputation and chemo drip?
She’s just a human. Who has lost much. And who has everything, because of Jesus.
She’s a girl who watches His dreams for her come true every day.
…because love wins.
In the Hall of Fame.
Often in life, as a leader of many who is also a young adult, I’ve had a lot of lash back. Not that people didn’t like what I was doing, or didn’t want to walk alongside me, but that people often times didn’t (and don’t) believe what I am saying or that why I am acting is genuine.
But the reality is, even in this broken world, some people are still honest. And some people really do still care about you. And they don’t do things half way. They are loyal. They will come in the middle of the night – probably with your favorite tray of cookies.
And they aren’t here to push you under or away.
In the midst of bombings in Boston and explosions in Texas and entire countries unaware of the outside world because of tyrants, be a sparkle. Be a light. Don’t let people who aren’t genuine make you think that you can’t be either.
It’s that kind of thing that gets you in the hall of fame.
…because love wins.
We need each other.
Santcus Real and myself in 2009!
There is a song that I really love by one of my favorite bands, Sanctus Real. It’s called We Need Each Other. Here, have a listen:
The premise is basically that we all need to love each other. Never have I felt such truth than when I moved to a new city, with new people, and three children whom I knew well passed away right away. I miss them. I miss college. I miss my best friends.
But here, Jesus has provided. And He always will. And those people are always going to be important. And so will the new ones.
Here are the blogs of two best friends of mine. One old, one, new. Beautiful women.
I love you, friends. And we all need each other. Be vulnerable and let yourself love. Let it be real.
http://fondlynostalgic.blogspot.com/
http://n0tdepressed.wordpress.com/
…because love wins.
Because Love Wins 