Category Archives: Amputation

Dreams do come true.

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ImageShe steps out into the light. The backstage had been a flurry of hundreds of people milling around. 

“Decker, check. Check. Check.” 

In 2 hours, thousands of people will enter this auditorium. They’ll come from all around the country. They’ll be in the middle of a fight with their wife. They’ll wish their children could do better in school. They’ll have an autistic sister. They’ll be sad. They’ll be hopeless. They’ll be happy. They’ll understand life, or they won’t. 

She stops out there. Says a prayer.

“Abba, it’s not me. It’s You. You have them. You be with them. You dream loud, speak loud, do what you do. I’m just so human.” 

She looks down at her leg. Who would have thought that this piece of molded plastic would lead to a headset, singing on stage, jumping up and down, crying in front of people? Well, surely not she. She was just this little girl with doggies on her footy pajamas sitting on the porch talking to her Father. 

And a tear falls. One tear, as she looks down at her mom, dad, and sister. Front row, always catching a tear, a hug, a smile, a reminder of who she is. 

Who is she that she could speak through an amputation and chemo drip? 

She’s just a human. Who has lost much. And who has everything, because of Jesus. 

She’s a girl who watches His dreams for her come true every day. 

…because love wins.

In the Hall of Fame.

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ImageOften in life, as a leader of many who is also a young adult, I’ve had a lot of lash back. Not that people didn’t like what I was doing, or didn’t want to walk alongside me, but that people often times didn’t (and don’t) believe what I am saying or that why I am acting is genuine.

But the reality is, even in this broken world, some people are still honest. And some people really do still care about you. And they don’t do things half way. They are loyal. They will come in the middle of the night – probably with your favorite tray of cookies.

And they aren’t here to push you under or away.

In the midst of bombings in Boston and explosions in Texas and entire countries unaware of the outside world because of tyrants, be a sparkle. Be a light. Don’t let people who aren’t genuine make you think that you can’t be either.

It’s that kind of thing that gets you in the hall of fame.

…because love wins.

Heartbreak.

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New ThingsSometimes it seems like everything hard is happening all at the same time. Do you get that? Do you know what that feels like? When you lose someone?

When you lose yourself?

This has been one of those years. Not just a day, or a week. It’s been a brutal year. Loss of people, loss of places, loss of security, loss of knowing. I’ve been way way way down. I’ve cried more than I’ve ever cried. And I’ve learned again the beauty of coming up. I’ve laughed more than I’ve ever laughed.

I feel alive. More than ever.

Last night a friend of mine called me after having a hard week himself. He doesn’t really know it, but his own bright spirit in the midst of a breaking down is enough to remind me that I have climbed up the hill. That I have more muscle, and that while I’m not to the top of the mountain yet, that this climb is beautiful.

Heartache is a mountain.

And your heart is a muscle. I say that a lot, after hearing it performed live in a song with a friend who has also been through great loss, and I learned that it’s true.

Heartbreak isn’t real. Our hearts our muscles, growing stronger as we climb. They don’t ever just…break.

Today marks 15 years since the day I was told I had stage 4 bone cancer. I remember the day like it was this morning. My heart races when I think of it, and I remember how afraid I was. I thought my heart couldn’t possibly beat again.

But here I am, 15 years later, even after a rough year, standing, looking up at the mountain, and smiling as I take one more step.

Just let the light come in. I promise you deeply, friend…this is not the end.

…because love wins.

You are a beautiful thing.

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This is one of my favorite songs, forever, and for always. You are a beautiful thing. Because God made you that way. Accept it, and let it be beautiful.

…because love wins.

Your Heart is a Muscle.

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“It’s times like this you must be calm. You gotta work it out, make it stronger, try for me, just a little longer. You say love’s a fragile thing, made of glass, but I think your heart is a muscle.”

Our hearts do not just break. They hurt when they stretch, but they get stronger after that. Don’t you give up. You will not break.

Your heart is a muscle.

…because love wins.

How to be happy.

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1.      Enjoy simplicity.

2.      Smile as much as possible.

3.      Live for today.

4.      Love each other.

5.      Watch the sunset.

6.      Read hundreds of books.

7.      Listen to great music.

8.      Love yourself.

9.      Learn from your mistakes.

10.  Understand that no one is perfect.

11.  Eat ice cream in summer.

12.  Build a snow fort.

13.  Act like a kid again.

14.  Take nothing for gratnted.

15.  Live up to your expectations.

…because love wins.

Meet Kaden Tjossem.

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This is Kaden.

You may remember him from a previous blog post. He’s a very old 5 years old this year. I met him a little over a year ago, when he was diagnosed with Osteosarcoma, the same cancer I had 14 years ago. The cancer is a rare form of bone cancer and resulted in us both having Rotationplasty.

He allows me the time to be a part of his life and laughs with me while we play. He fights strong, he’s kind, sweet, and loves his parents. He is a pro video gamer, and has learned to walk as well as me at the age of five. He’s the hero of many, and he is the version of honest that makes the world’s hearts smile.

This Thanksgiving, Kaden is still battling his cancer hard. After it came back, he told me that it was, and that he didn’t want to have to be in the hospital. He wanted to play with his puppy and be a 5 year old. I want that for him too.

You can join in prayer and encouragement of Kaden’s journey by following their new page on facebook: Prayers and Love for Kaden. Kids should not have cancer, and while we work on fixing that, let’s also work on making sure these families facing this atrocity never do it alone.

This holiday season, give your joy and prayers, away.

…because love wins.

*Kaden and I met through an organization near and dear to my heart, Brighter Tomorrows. Feel free to find out more about non-profit here.

I am thankful for backwards legs.

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http://www.youtube.com/watch?v=njJUcTbR2SY

If you have not seen the Mayo Clinic educational video done about Rotationplasty which takes over the internet for all things Rotationplasty, please see it above.

When I had cancer, I didn’t have a video (nor very many people) to help me decide if Rotationplasty was good for me. But, when I started to re-learn sports and mentor other children with the procedure, I knew this had to change. So we made video after video. At Mayo Clinic, each patient facing this operation meets me, and is given a copy of this to watch on repeat. I get to be what I never had, for others.

Today, I often find messages from people all around the world in my inbox saying things like:

“It was your videos with the Mayo Clinic that convinced us rotationplasty was the way to go. Up until then we were (in our minds) sure that limb salvage was best, but after meeting patients who have had both and seeing your video, we knew in our hearts rotationplasty would allow our son a productive and active life. Thank you.”

Today, I am thankful for being alive. Thankful for Rotationplasty, and incredibly thankful to have the opportunity to walk others along the path I walk.

Appreciate your challenges today.

…because love wins.